• ABOUT

    My story Part 2 – 8 long months waiting for an answer

    Shortly after Josh was born, we were told that the symptoms he had (low muscle tone, no sucking reflex, no cry, always happy and contempt, no drinking) were just symptoms and they are a part of something bigger. I did not believe a thing the doctors were saying. I kept telling the doctors, that Joshua would just need to come home and be with his family – get used to life out of womb. And that maybe he is just a quiet, sweet baby. They told us that we needed to go with him to a genetic consultation and gave us an appointment approx. 4 months after his birth. It…

  • LIFESTYLE

    My story Part 1 – Joshua’s birth

    I’m publishing my first blog post as the first post of a series, because the story I want to tell you is content for more than just one post.   I want to start by telling a little part of my story, about when Joshua was born and I´m gonna do my best to keep it short- ish 🙂   It all started while I was pregnant with Joshua. The doctor told me, that I had a little too much amniotic fluid, but there is no need to worry. He said, that there are many potential reasons for this, but without any testing, there would be no certainty as to…

  • ABOUT

    ABOUT

    Hi!  I’m Daria, the heart behind this blog.  I’m pretty loud and very bad at jokes, but I keep trying.  My husband thinks I should stop  I was born and raised in Romania (beautiful country) and after getting married,  I moved to Germany. I’m  living in a small city/village with my husband and best friend Marco and our two littles, Jason + Joshua – my adventurous,  heart melting boys who never stop saying my name. I am a stay at home mom and I’m loving it!   After our son Joshua was born with Prader Willi Syndrome, a rare genetic disorder, I felt more and more called to share our journey,…